Draft Article 6
In order to formulate and implement appropriate policies to protect and promote the rights of persons with disabilities, States Parties should encourage the collection, analysis, and codification of statistics and information on disabilities and on the effective enjoyment of human rights by persons with disabilities. The process of collecting and maintaining this information should:
23: There were differing views within the Working Group regarding the inclusion of this draft Article. Some delegations strongly supported the inclusion of an article on statistics and data collection in the text of the convention for several reasons. Data collection is recommended in Rule 13 of the Standard Rules on the Equalisation of Opportunities for Persons with Disabilities. Its inclusion could allow States to respond more effectively to the needs of persons with disabilities and to have an accurate assessment of the situation of the persons concerned so as to implement programs for their benefit. General Assembly Resolution 58/132 of 22 December 2003, in paragraph 8, also deals with the issue of data and statistics. In the present draft Article, the respect for the right to privacy is fundamental.
Other delegations opposed the inclusion of an article on statistics and data collection in the convention, for several reasons. They expressed a concern for the respect of the right to privacy and the risk of misusing the information, and considered that such an article did not belong in a human rights treaty. They considered that statistics were not useful as a policy tool, and that resources spent in data collection should be used instead in programs for persons with disabilities. There should be a mainstreaming of surveys and not just surveys for persons with disabilities.
Other delegations suggested that the draft article should be re-titled. One suggestion was "Collection and Protection of Statistics and Data". It was clearly considered that any data collected on disabilities must not infringe on the human rights of persons with disabilities.